After my experience with Aidan at the hospital back in January, I’ve decided that the last thing we need to be focusing on, as a country, is an all-inclusive, comprehensive health care plan. Both sides agree, health care is broken - but there are two fundamentally different ways to fix it - one forcing us to reconsider the entire structure while meticulously criticizing each morsel of the entire system and one that intends to mend what we have as a system with a huge bandage while piling on an extra 30 million people into the fray.
I speak not from a Republican or Democratic soapbox but from personal experience - I am one of the millions of Americans with respectable employer-provided Health Care. My son spent two days, full of frustration, confusion, redundancy & excess, at our local hospital - and I doubt the story would be any different at any number of hospitals across our country. I was raised by two nurses, so before I start I’d like to say that I have a high amount of respect to ALL individuals that choose medicene as a profession. I whole-heartedly believe that these problems aren’t the people (nor do I blame, individually any doctors, nurses or professionals) - it’s the system itself. I could go on for days for why this system is broken, why it doesn’t need a greater load of subscribers and why only mending the wound won’t help - so I’ll try to keep it fairly concise on why I believe this old horse called Health Care needs to be taken out to the field and shot.
Lack of supervision, recordkeeping & overall intervention: Here you are, a very concerned parent, in a hospital where your son is battling Pneumonia, Broncitis & RSV (all at the same time) and you want nothing more than to get your child home. You find that it’s the lack of effort of those around you that’s preventing you from knowing anything about anything - your world has already been turned upside down and the lack of effort on the part of specialists around you isn’t helping at all. Specifically: Aidan wasn’t hydrated enough for him to effectively fight the infection - so we were asked to push fluids or risk an IV. IV’s being ranked pretty far up on a kid’s “scary-meter” so we desperately tried to avoid that. Yet, no matter how much we pushed, with each successive nurse that came by to check, it was still not enough. When asked how much per hour needed to be pushed, we got a cryptic message that didn’t explain anything aside from the fact that we weren’t doing enough. Through several shifts of nurses, we desperately tried to avoid an IV - but without the previous nurse recording our progress & our attempts at hydrating him, the next nurse just started the process over again with little encouragement: keep on pushing it, you’re not doing enough - and to boot, acted like we had been sitting there doing nothing since the last shift she saw us. There was no acknowledgment of what the other nurse said, how far we had come or how far we needed to go - just simply that we hadn’t done enough, hadn’t made any progress and that our lack of attempts were dooming him to being hooked up to yet another tube.
After the first day in the hospital, our doctor outlined some goals for us to meet before he could go home - one required his oxygen level to be consistently high without the assisted oxygen. For the next several hours, I battled nurses that would lecture me every time his Oxygen level slipped below 90 - a fairly high level given that he had to maintain 94 to go home. I use the word “lecture” lightly - more accurately, it felt like belittling - and at that, stubborn belittling as they were unable to listen to simple rationale: that a child eating couldn’t have a an oxygen tube in their face, that children struggle when foreign objects are thrusted in their face and that when fussing, oxygen levels might, just might, go down. Apparently my son should’ve been virtually hogged-tied, unable to move for 48 hours straight and not fed at all to keep some of the nurses happy. At that, because I constantly had a nurse hounding me, I couldn’t even test whether Aidan could hold his oxygen levels above 94 until certain nurses were off-shift: keeping us in the hospital, easily, another four to eight hours than we needed to. Anytime I tried to explain the doctor wanted to us to test him off the oxygen, they refused to believe me, refused to check the record for a note of said suggestion and, in not so many words, said that they knew best.
Another stipulation for discharge was that Aidan maintain healthy levels of hydration while lowering the amount the IV was providing. This took me four hours of badgering the nurses - and several of them at that - to advance Aidan’s treatment at all. They, once again, refused to believe me, took over 3 hours to check the records and kept us, once again, in the hospital for more time than we needed to be.
Slow to treat, slow to heal: Aidan’s doctor stopped by every 12 hours - that counts four times in a two day period that we had five minutes of contact at a time. I’m not critizizing the doctor personally - we love our doctor and think that they do stellar work - it’s the fact that it’s standard to only expect to see them only a couple times during your entire stay. There were several times during our stay where Aidan surpassed the goals set by the doctor prior to her next visit - and not by just a couple minutes/hours - we’re talking 6-8 hours extra on expensive Oxygen, 2 extra respiratory treatments that he didn’t need and 4 hours extra on IV. If doctors in the same specialty (or the same private practice) would somehow be pooled together so that a team of two or three doctors could take shifts on any given hospital ward and check on the progress of their colleague’s patients (as well as their own) we could provide checkups every six (or, God forbid, even less) hours on even the less crucial patients. I understand my Son wasn’t of prime concern - I don’t expect him to be treated like a child who is actually struggling with life - but if I’m being admitted to the hospital, obviously it’s a bit more serious than “four checkups in a two day period” seems.
Redundancy, redundancy, redundancy: Even though the doctor wasn’t there enough, my son’s room was consistantly flooded with other people. Nurses apparently no longer take vitals - forcing someone else to trail the nurse five minutes later to take the measurements that the nurse needed five minutes before - easily prolonging treatment adjustment and progress. A Respiratory Specialist needs to administer the nebulized treatments - but only the ones that the nurses can’t give - yet they still need a nurse to help them with the procedure. To boot, I have to pay for the specialist to come in every four hours and administer a treatment that, oddly enough, is alright for me to do, by myself, at home for my son once he’s discharged. This happens at the same time that I’m being reminded how much my son needs rest to get better - something you can’t do with half a dozen people prodding you in a given 4-hour period.
What makes me so irate about this whole situation is that no matter what I did, it wasn’t enough; no matter how certain I was I still couldn’t tell which way was up; no matter how much my child needed to feel safe, I couldn’t muster up the certainty to provide the grounding that he needed. I didn’t ask to be placed in the middle of a war of attrition between doctors and nurses - and that’s exactly what this felt like. The nurses fell short of saying that the “doctor doesn’t know what they’re talking about” but you could see that’s what their actions (or inactions, in this case) were intending. I hate the logic that you should stay in the hospital as long as possible to insure a rebound doesn’t occur - not only does it start to chafe away at my wallet but with the lack of individualized care or specialized supervision, I have a hard time not concluding that some of our hospital stay felt like an overpriced hotel room with a persistantly annoying custodial staff. I also despise the logic that if I’ve got insurance, I shouldn’t worry about it - “it’ll all be covered!” That’s the mentality that’s gotten us in this mess in the first place - although my premiums and extent of coverage will be minimally impacted by Aidan’s stay at the hospital. Multiply that same effect across the entire country - consider if, on average (completely hypothesizing) that Americans stay 4 hours extra at the hospital than they need to - that adds up amoungst 300 million.
Let me say that I respect all of those that choose the medical profession - Nurses, Doctors and Specialists are all amazing individuals that truly do care much more than I’ve just alluded to. I’m convinced that it’s the system itself that has forced all of them to be so ineffective at what they all strive to do - I don’t blame the nurses or doctors individually, I blame the system and how its caused these care providers to become so procedural and outwardly callous. Whatever we do to health care, I hope that we actually fix it rather than sweeping the mess underneath a rug of procedure laden with red tape.